Saturday 17 May 2014Print this page
The medical data and privacy of participants in the large LifeLines study is in a private limited liability company (In Dutch “Besloten Vennootschap”) construction as safe as at the UMCG, explains scientific director Ronald Stolk of Lifelines. Life Lines is a study to healthy ageing in the three Northern provinces. The database stores research data of 167,000 Northerners .
The scientific project Lifelines of the UMCG is recently transferred to a Ltd. (B.V.). The new construction is needed to make scientific material more accessible to researchers worldwide. To ensure the safety of the research and the data, the building, the staff and the household effects of Lifelines are housed in one Ltd. and the database in another Ltd. This in case something happens to the first example, although that’s, according to Stolk, practically impossible because UMCG remains the only shareholder.
The use of medical data by scientists will not change: "We select under strict control which scientists and what type of research may make use of the anonymous data."
Lifelines has since February 2014 been transferred to a private limited liability company (In Dutch “Besloten Vennootschap”), with UMCG as 100% shareholder. Lifelines creates in this construction an independent position in contact with researchers and research institutions at home and abroad. Lifelines is not only created by researchers at the UMCG, but for all researchers who conduct research in the field of ageing.
Lifelines ensures that the privacy of all participants is guaranteed. Researchers can only do research with anonymized data and only a small part of the data in a secure environment.
Lifelines has no profit and no commercial interest. Lifelines does require a fee to researchers.
To finance after 2017 Lifelines should provide new financial resources. This is done through new grant applications, the issue of data and biomaterial for researchers, by advising on scientific research and biobanks to other organizations, with rental equipment and locations - as they are not needed for Lifelines activities.
Only scientists can do research with Lifelines data and genetic material. The scientists who do research work within UMC's, Universities, general hospitals, academic institutions, both nationally and internationally.
Lifelines guarantees that genetic material does not fall into the hands of business and can not be used commercially